Last update:

   24-Jul-2020
 

Arch Hellen Med, 37(4), July-August 2020, 555-561

CASE REPORT

The Greek translation of the Tuberous Associated Neuropsychiatric Disorders (TAND) checklist

I. Laina
Tuberous Sclerosis Association of Greece, Athens, Greece

Tuberous sclerosis complex is a rare multisystem genetic disorder with a range of physical manifestations that require evaluation, surveillance, and management. Individuals with tuberous sclerosis complex often also present a range of behavioral, intellectual, academic performance, psychiatric, neuropsychological and psychosocial difficulties, which may create the greatest burden of the disease. Around 90% of individuals with tuberous sclerosis complex will have some of these difficulties during their lifetime, yet only about 20% ever undergo evaluation and receive treatment. The neuropsychiatry panel at the 2012 Tuberous Sclerosis Complex International Consensus Conference coined the term Tuberous sclerosis complex-Associated Neuropsychiatric Disorders (TAND) to bring together these multidimensional manifestations of the disorder. The panel also agreed to develop a TAND Checklist as a guide for screening, and recommended annual screening for individuals with TAND. An outline conceptualization of TAND is presented here, including the full official Greek version of the TAND Checklist.

Key words: Assessment, Checklist, Neuropsychiatric disorders, TAND, Tuberous sclerosis.


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